Strange, both Paula & I had the best nights sleep we’ve had for a long time. Must be the knowing that helps, even if the news is upsetting.
Yesterday evening after leaving the hospital, we went to see my parents to tell them the news, as expected they were upset as was I. Funny that I can talk to my father and keep it together but as soon as I look at my Mum, the tears flow.
Anyway they know now and I know they will be supportive and do all that they can to help.
Once we got home, a quick bite to eat and then it was time to hit the phones and send texts where appropriate. Everyone is shocked to hear the news but all offer support for both me & Paula which is very much appreciated.
I explain that because of the location of the tumour, I will need to have a stoma fitted. This is because once I start my radiotherapy (more in that in a while) the tumour will grow before it shrinks. If it does it will make it virtually impossible for me to open my bowels.
This will take place on Tuesday 13th Sep and I will be in hospital for four days. This is because it will take a day or two for the stoma to start to work and I need to learn how to use it, clean it and change the bag.
Once out of hospital I will be given some time for the surgery to settle and then I will start my radiotherapy which will be every day, Mon to Fri (I get the weekends off, woo hoo!) for six weeks. The radiotherapy is to shrink the tumour so that when they come to remove it, surgically, the least amount of damage will be done to the tumour site.
Next, will be a break of twelve weeks for the therapy to continue to work. As my consultant explained, it’s a bit like a microwave meal that you cook for five minutes then leave to stand for two minutes!
Along the way there will be more scans and some chemotherapy. Once the tumour is removed I will be given more chemo to make sure it’s all gone.
At this stage, there is no sign of cancer anywhere else as I have had a CT scan of my abdomen which shows that all of my other organs are clear, phew!
Today I told the last few people that it was too late to tell last night and as before, all gave messages of support and positivity.
I have had all of the phone calls from the hospital that I was expecting and now have appointments on Monday for blood test, pre assessment and to meet the stoma nurse.
The stoma nurse will explain how it all works and mark where it needs to go. This is important as they don’t want it to interfere with my ‘normal’ clothing so they will want to avoid any creases (not that my belly is that big!) and the belt line. They will mark the spot where the stoma is to go so that the surgeon puts it in the correct place.
That’s it for today!