Another routine day, Cecil did ‘his thing’ in the morning and then pretty much kept quiet for the rest of the day.
We managed to get Paula’s car collected by the local garage, great service from a local company and towards the end of the day, they called to say it was all fixed, turned out it was a pressure switch that needed to be replaced. Phew!
Spent a couple of hours at my desk which was starting to resemble a bomb site, had a few documents to get out to clients and just some general tidying up. By about 1130, I had to call it a day as my bottom was giving me quite a bit of pain. Still getting pain as the surgery I’ve had has had no effect on the tumour. I think I’m going to need some stronger painkillers as even with paracetamol and ibuprofen, it’s not quite getting rid of the pain.
It was nice to get back to a bit of normality, Paula had some admin to catch up on as well so it was like a ‘normal’ Monday, working together in the office at home. Paula is a key member of our business as one of her jobs is to pay everyone!!
In the afternoon the stoma nurse called as arranged, another positive meeting. She was pleased with what I am doing. She brought some supplies.
Because of the shape of my stoma, I have been told that I should be using a convex bag. This is shaped in such a way that should reduce the risks of leakage, something that I would quite like to avoid. I was given a convex bag whilst I was in hospital but it didn’t feel very secure and was quite difficult to fit. The main reason being that the flange (the bit that sticks to the skin) was quite stiff and difficult to bend.
When you’re putting bag on, you have to be able to bend it downwards so that you can see the bottom of the hole is fitting over the bottom of the stoma. Bear in mind, you are looking down over the top of the stoma so it’s quite tricky to see the bottom of it anyway (this is difficult to explain!), so having a flange you can bend is vital.
The nurse gave me some different convex bags which have a pliable flange so I’m going to give these a try and see how I get on. I’ve got to call her on Monday to confirm which bags I’m going to use. She will then arrange my regular supply order.
This will include all that I need to take care of Cecil and all of his needs!
One of the things I will also get is a RADAR key. This is a universal key that will unlock disabled toilets which are often locked. This is a handy thing to have as in the event that I am out and need to change Cecil it means I can use a bigger loo that is more likely to have a shelf. This is really important as you need quite a lot of equipment in order to change the bag.
Imagine being at say, the O2 and wanting to use a locked disabled toilet. First you’ve got to find someone to ask to unlock the toilet. Then explain why you need it unlocking, bear in mind I’m not in a wheelchair so don’t look disabled. Then wait for them to find the key. In the meantime, Cecil could be filling up the bag and as I’m sure you will appreciate, once the bag has reached capacity, there’s only one way for the output to go!!
The comforting thing is that the stoma nurses are always at the end of the phone should I need any help at any time. I feel pretty confident but you never know if you’re going to run into any issues in the future.
The bad news is that I have been told I should not drive until the start of next week, not very happy about that but you have to do as you’re told. I was hoping to be back on the road by the middle of this week. A few more days won’t do any harm I suppose.
Anyway, another day ticked off on the road to recovery.
Still waiting to hear regarding the CT scan I should be having this week, hopefully I’ll hear something tomorrow.
That is it for today!