Day 17 & 18

Day 17

Nothing to report really, everything appears to be settling into a routine.

Day 18

My stoma nurse asked me to call her today to confirm what bags I want to have on regular order. I’ve been using flat rather than convex bags and they seem to be OK.

The convex bags (I think I’ve covered these in previous posts) are OK but by their very nature, protrude from the skin somewhat so are more visible under a shirt. So, for now, I’m going to stick with the flat bags.

I called her in the morning but she was not in the office so left a message. Later in the morning she called back (yes, sometimes people do actually call back when they say they will!) and I confirmed that I wish to proceed with the flat bags.  I also wanted to keep a supply of convex bags as once I start my treatment next week, my output is likely to be much looser and this could lead to leaks with the flat bags.  Naturally, this is something to be avoided so it will be handy (and sensible) to have some convex bags in stock.

She said that she already had a box of convex bags for me and I said that I would go to the hospital to collect later on.

The one thing we didn’t know was whether my GP surgery would allow the company that deliver the supplies to obtain prescriptions direct from my GP. Some GP’s are not happy to communicate with third party suppliers. The stoma nurse said she would call both the supplier and my GP to check. 10 minutes later she called back to say all is OK and that my first delivery would be with me on Wednesday. That is impressive service.

So, I’m now set up to receive an supply whenever I need it and this will contain all that I need to keep Cecil happy. Once I open the last box of bags (they come in boxes of 30 and I’m allowed 90 per month) I’m to request a new supply and it will be delivered to my door within a few days.

The NHS comes in for a lot of criticism but I have to say that this really is an excellent service and throughout my dealings with both the private and the NHS hospital and services, I have no complaints whatsoever.

This week feels a bit more normal but it’s really just the pre cursor to the start of my treatment next week.  This cannot start quick enough for me.

I’m now starting to feel an increase in pain and sometimes the pain can be quite intense. The last few nights it has woken me at about 0400 and I have needed to take some painkillers so that I can get back to sleep.  I envisage this getting worse once the radiotherapy starts as the tumour will increase in size before it shrinks. Luckily I have the  stronger painkillers that my consultant gave me on stand by and if required I will use them.

I’m back to where I was in terms of the amount of sitting I can do in one go and find that once I have been at my desk for a while, I need to take a break and lie down so that it takes the pressure off of my backside.  I hope that as the tumour shrinks, the pain will start to dissipate, at least that’s my wish.

I am still getting quite tired and often have a nap in the late afternoon, perhaps I’m Spanish and don’t realise??

Last night I had an appointment to see my first client ‘post Cecil’ which I was looking forward to completing, another bit of normality.  However, I received a text to say that she was having to work late and wouldn’t be home in time.  I have rearranged for later in the week, so the first outing for Cecil in a suit is still to come, let’s hope he behaves himself!

I will leave you with a text message I received from a client yesterday, a nice message to receive and tells me that I’m getting the job I do somewhere near right!

“Hi Patrick. Hope all is going well. We’re all missing u knowing ur not in your office just a phone call, text or e-mail away. U have a wonderful way of making us feel we’re the only ones u have to deal with 😊. Thinking of u x”

 I feel very lucky to have such wonderful people around me.
Bye for now
Pat.
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2 thoughts on “Day 17 & 18

  1. I was driving home last night and heard a piece on a science program on the radio you may be interested.
    The host of the program was talking with a robotics specialist who’d been investigating how to introduce nano-robots into medicine. He was looking at using these nano-robots as drug delivery systems for chemotherapy. However, the nano-robots needed to be as small as 2 microns (compared to the width of a human hair at around 80 microns). As technology hasn’t advanced far enough to build such things as power sources for nano-robots as small as 2 microns he had to abandon his idea.
    However, he and his team came across a bacteria that they thought they could use. Over the past 15 years they’ve been developing a use for the bacteria whereby they are now experimenting on mice with colorectal cancer.
    Apparently, these bacteria can detect magnetic waves and also tissues in the body that have lower oxygen levels than surrounding tissues. They’ve been able to ‘attach’ the chemotherapy drug to the bacteria and inject millions (if not billions) of the bacteria into the mice. Then, using magnetic waves, they can direct the bacteria to where the cancer tumour is. Once the bacterium are in the general area of the tumour their secondary sensing ability takes over and enables them to pinpoint only the cancer tumour (apparently, cancer tumours have low levels of oxygen). Once at the tumour the bacteria then deliver the chemotherapy drug at the tumour without destroying the surrounding healthy tissue.
    If you want to hear the full interview go to http://www.cbc.ca/radio/quirks/quirks-quarks-for-september-24-2016-1.3774759/nature-s-drug-delivery-service-1.3774950

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    1. What a shame this is not available now! This really would make such a difference as it appears to me that it would negate the need to perform an early stage colostomy as radiotherapy would not be required. If radiotherapy was not required the tumour would not increase in size, if the tumour does not increase in size the colostomy would not be required – well, not in my case anyway.

      However, I think I would still have ended up with the colostomy due to the site of the tumour. Even with shrinking, the damage caused by removing it would still mean that there is not enough of the rectum left to be able to put it all back together and it work properly.

      But, for people with colorectal tumours ‘higher up’, this would mean no chemo medication and the resulting side effects would be avoided too.

      Amazing to think that these guys are working away in the background and coming up with some tremendous outcomes, let’s hope they get it into the mainstream soon, it will really help lots of people.

      Thanks for posting Steve, very interesting.

      Like

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